A B.C. teenager with a rare neuromuscular disease that's slowly robbing him of strength, has finally won his fight with B.C.'s Ministry of Health to get access to Spinraza, one of the most expensive drugs in the world.
The family of a nine-year-old girl with a rare metabolic disorder says the eye drops that stop the disease from blinding her are no longer affordable after Health Canada approved an Italian pharmaceutical company's official version of the drug.
A boy with a rare degenerative disease is fighting the B.C. government for access to an expensive drug.